NY Disability Organizations
Vocational and Educational Services for Individuals with Disabilities
Adult Career and Continuing Education Services-Vocational Rehabilitation (ACCES-VR) offers access to a full range of employment and independent living services that may be needed by persons with disabilities through their lives.
Alzheimer's Association
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Phone: 315-472-4201
Address: 441 West Kirkpatrick St, Syracuse, NY 13204-1361 -
Hudson Valley/Rockland/Westchester New York Chapter
Phone: 845-471-2655
Address: 2 Jefferson Plaza, Suite 103, Poughkeepsie, NY 12601 -
Phone: 631-580-5100
Address: 45 Park Ave, Bay Shore, NY 11706 -
Phone: 646-744-2900
Address: 360 Lexington Ave, 4th Floor, New York, NY 10017 -
Phone: 518-867-4999
Address: 4 Pine West Plaza, Suite 405, Albany, NY 12205 -
Rochester & Finger Lakes Region Chapter
Phone: 585-760-5400
Address: 435 East Henrietta Rd, Rochester, NY 14620 -
Phone: 716-626-0600
Address: 2805 Wehrle Dr, Suite 6, Williamsville, NY 14221
Office Locations Map: http://www.alz.org/apps/findus.asp
Association Phone: 1-800-272-3900
Association Email: info@alz.org
Autism Society
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Phone: 718-519-4797
Fax: (718) 515-1534
Email: ny-bronx@autismsocietyofamerica.org
Address: FSPDD at North Central Bronx Hospital, 3424 Kossuth Avenue, Room 15A11, Bronx NY 10467 -
Phone: 315-447-4466
Email: cnyasa@yahoo.com
Address: 4465 East Genesee St, PMB 252, Dewitt, NY 13214-2242 -
Greater Capital Region Chapter
433 State Street 4th Floor, Schenectady, NY 12305
Phone: 518-355-2191
Email: resource@asgcr.org -
844-HVAS-NOW 844-482-7669
info@hudsonvalley-autismsociety.org
42 Crown Street Kingston, NY United States 12401
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Phone: 516-404-2306
Email: nypaac@yahoo.com
Address: P.O. Box 7472, Wantagh NY 11793 -
Phone: 716-633-2275
Email: info@autismwny.org
Address: 19 Limestone Dr, Suite 1, Buffalo, NY 14221-7091
Society Website: http://www.autism-society.org/
Autism Spectrum (outside of Autism Society)
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Phone: 716-631-5777
Toll free: 1-888-AUTISM4
Fax: 716-565-0671
Email: vfedericoni@autism-services-inc.org
Address: 4444 Bryant Stratton Way, Williamsville, NY 14221 -
Autism Speaks (New York Chapter)
Phone: 212-252-8584
Address: 1 East 33rd St, 4th Floor, New York, NY 10016 -
Phone: 585-248-9011
Address: 180 Linden Oaks Dr, Rochester, NY 14625 -
University at Albany - Center for Autism & Related Disabilities
Phone: 518-442-2574
Fax: 518-442-4834
Email: card@albany.edu
Address: 1535 Western Ave, Albany, NY 12203 -
URMC Golisano Children's Hospital - Autism Spectrum Disorders Program
Phone: 585-275-2986
Fax: 212-947-9790
Email: Sharon_nagel@urmc.rochester.edu
Address: 601 Elmwood Ave, Rochester, NY 14642
Blind/Vision Loss
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American Council for the Blind (New York Chapter)
Phone: 800-522-3303
Email: President@acbny.org -
American Foundation for the Blind (New York Chapter)
Phone: 212-502-7600
800-232-5463
Email: afbinfo@afb.net
Address: 11 Penn Plaza, Suite 300, New York, NY 10001 -
Phone: 716-689-1560
Email: braillegroupbuf@gmail.com
Address: P.O. Box 342, Getzville, NY 14068
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Commission for the Blind & Visually Handicapped
Phone: 1-866-871-3000
TTD: 1-866-871-6000
V: 866-871-3000
Address: Capital View Office Park, 52 Washington St, Rensselaer NY, 12144-2796 -
Helen Keller Services for the Blind
Brooklyn - 57 Willoughby St, Brooklyn, NY 11201
Phone: 516-944-8900
Fax: 718-935-9463
Email: HKNCinfo@hknc.org
Nassau - One Helen Keller Way, Hempstead, NY 11550
Phone: 516-485-1234
Fax: 516-538-6785
Suffolk - 40 New York Ave, Huntington, NY 11743
Phone: 631-424-0022
Fax: 631-424-0301 -
We have compiled a listing of resources based on specific needs and situations. From help adapting to life with low or no vision, to financial assistance for the vision-impaired, these resources can provide assistance and helpful insights for easier daily living and a higher quality of life.
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National Federation of the Blind (New York Chapter)
Phone: 718-567-7821
Fax: 718-765-1843
Email: office@nfbny.org
Address: P.O. Box 205666, Sunset Station, Brooklyn, NY 11220 -
Pathways for the Visually Impaired
Phone: 716-882-1025
Address: 1170 Main St, Buffalo, NY 14202
Brain Injury
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Brain Injury Association of New York State
Phone: 518-459-7911
Email: info@bianys.org
Address: 10 Colvin Ave, Albany, NY 12206 -
New York State Department of Health
Bureau of Occupational Health and Injury Prevention
Empire State Plaza-Corning Tower, Room 1325
Albany, New York 12237
(518) 402-7900
injury@health.ny.gov
Cerebral Palsy
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Phone: 607-734-7107
Email: info@able-2.org
Address: P.O. Box 1554, 1118 Charles St, Elmira, NY 14902 -
Phone: 315-455-7591
Email: info@accesscny.org
Address: 1603 Court St, Syracuse, NY 13208 -
Adapt Community Network (formerly UCP of NY City)
Tel: (877) 827-2666
info@adaptcommunitynetwork.orgAddress: 80 Maiden Ln, 8th Floor, New York, NY 10038-4811
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Phone: 716-505-5500
Email: info@aspirewny.org
Address: 2356 North Forest Rd, Getzville, NY 14068 -
Center for Disability Services
Phone: 518-437-5700
Address: 314 South Manning Blvd, Albany NY, 12208 -
Cerebral Palsy Associations of New York State
Phone: 518-436-0178
Email: AffiliateServices@cpofnys.org
Address: 90 State St, Suite 929, Albany, NY 12207 -
Cerebral Palsy of Ulster County
Phone: (845) 336-7235
Address: P.O. Box 1488, Kingston, NY 12402 -
Phone: 914-937-3800
Email: info@cpwestchester.org
Address: 1186 King St, Rye Brook, Purchase, NY 10605 -
Phone: 585-334-6000
Email: kcrevelling@cprochester.org
Address: 3399 Winton Rd South, Rochester, NY 14623 -
Phone: 315-255-2746
Address: 182 North St, Auburn NY, 13021 -
Empower (formerly Niagara Cerebral Palsy)
Phone: 716-297-0798
Email: info@empower-wny.org
Address: 9812 Lockport Rd, Niagara Falls, NY 14304 -
Phone: 607-272-5891
Email: info@rackercenters.org
Address: 3226 Wilkins Rd, Ithaca, NY 14850-9568 -
Handicapped Children's Association (HCA)
Phone: 607-798-7117
Email: hca1serves@aol.com
Address: 18 Broad St, Johnson City, NY 13790 -
Phone: 315-789-6828 Address: 731 Pre-Emption Rd, Geneva, NY 14456
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Hudson Valley Cerebral Palsy Association
Phone: 845-878-9078
Email: hvcs@aol.com
Address: 40 Jon Barrett Rd, Patterson, NY 12563 -
Phone: 845-294-8806
Email: info@inspirecp.org
Address: 2 Fletcher St, Goshen, NY 10924 -
Phone: 845-708-2000
Email: jawonio@jawonio.org
Address: 260 North Little Tor Rd, New York, NY 10956 -
Phone: 718-380-3000
Email: info@queenscp.org
Address: 81-15 164th St, Jamaica, NY 11432 -
Phone: 845-794-1400
Address: Box 840, Benmosche Rd, Harris, NY 12742 -
United Cerebral Palsy of Suffolk
Phone: 631-232-0011
Email: info@ucp-suffolk.org
Address: 250 Marcus Blvd, P.O. Box 18045, Hauppauge, NY 1178-8845 -
United Cerebral Palsy of the Tri-Counties
Phone: 518-798-0170
Email: pcfccent@prospectcenter.com
Address: 133 Aviation Rd, Queensbury, NY 12804 -
Phone: 315-724-6907
Address: 1020 Mary St, Utica, NY 13501
Children with Disabilities
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Phone: 212-947-9779 / 866-427-6033
Fax: 212-947-9790
Email: jchaifetz@advocatesforchildren.org
Address: 151 W. 30th St, 5th Floor, New York, NY 10001 -
New York Center for Child Development
Headquarters:
159 West 127th Street
New York, NY 10027
(212) 752-7575
Fax: (212) 752-7564
Email: info@nyccd.org -
Resources for Children with Special Needs, Inc. (RCSN)
Phone: 212-677-4650
Email: info@resourcesnyc.org
Address: 116 E. 16th St, 5th Floor, New York, NY 10003
Deaf/Hard of Hearing
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Phone: 716-833-1637
Video phone: 716-335-9192
Fax: 716-833-7480
Address: 2495 Main St, Suite 446, Buffalo, NY 14214-2155 -
Empire State Association of the Deaf (ESAD)
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Genesee Valley Region Registry of Interpreters for the Deaf
Address: P.O. Box 23672, Rochester, NY 14692-3672 -
Lexington School for the Deaf & Center for the Deaf
Phone: (V): 718-350-3300
TDD: 718-350-3056
Email: generalinfo@lexnyc.org
Address: 30th Ave & 75th St, Jackson Heights, NY 11370 -
Long Island Registry of Interpreters for the Deaf
Address: P.O. Box 3039, Garden City, NY 11531-3039 -
New York City Registry of Interpreters for the Deaf
Email: info@nycmetrorid.org -
New York Registry of Interpreters for the Deaf
Email: joannewdermody@gmail.com
Address: PO Box 461, Camillus, NY 13031 -
NYSED ACCES-VR Interpreter Service
ACCES-VR provides sign language interpreter services and/or video remote interpreting services to individuals who are deaf or hard of hearing to assist them in accessing and participating in vocational rehabilitation (VR) services.
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RIT National Technical Institute for the Deaf (NTID)
Phone: 585-475-6400
Fax: 585-475-5978
Address: 52 Lomb Memorial Dr, Rochester, NY 14263-5604
Down Syndrome
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Phone: 516-361-7263
Email: alexandersangels@gmail.com
Address: P.O. Box 486, Jericho, NY 11753 -
Association for Children with Down Syndrome (ACDS)
Phone: 516-933-4700
Email: information@acds.org
Address: 4 Fern Place, Plainview, NY 11803 -
Down Syndrome Advocacy Foundation
Phone: 516-983-7708
Email: dsaf2@optonline.net
Address: P.O. Box 12173, Hauppauge NY, 11788 -
Down Syndrome Association Hudson Valley
Phone: 845-226-1630
Email: info@dsahv.org
Address: P.O. Box 352, Gardiner, NY 12525 -
Down Syndrome Association of St. Lawrence County
Phone: 315-562-2118
Email: dsaofslc@gmail.com
Address: P.O. Box 304, Canton, NY 13617 -
Down Syndrome Information Network of the Twin Tiers
Phone: 607-739-0272 (Michelle)
Email: battersby93@yahoo.com; dsintt@gmail.com
Address: 215 Scott Ln, Horseheads, NY 14845 -
Down Syndrome Parents Group of Western New York
Phone: 716-832-9334
Email: dspgwny@hotmail.com
Address: 547 Englewood Ave, Kenmore, NY 14223 -
Family & Friends Down Syndrome Association of Niagara
Phone: 716-870-4904
Email: trisominds21@aol.com
Address: 4661 Lower River Rd, Lewiston, NY 14092 -
Flower City Down Syndrome Network
Phone: 585-568-7421
Email: saccapez@rochester.rr.com
Address: 2117 Buffalo Rd, #132 Rochester, NY 14624 -
Franklin County Down Syndrome Society
Phone: 516-521-3012
Email: mmcardle001@twcny.rr.com
Address: 28 Third St, Malone NY, 12953 -
Manhattan Down Syndrome Society
Phone: 646-261-5334
Email: manhattandowns@gmail.com
Address: 124 West 121 St, New York, NY 10027 -
Phone: 607-965-8377 Ext. 128
Email: info@pathfinder.tzo.com
Address: 3 Chenango Rd, Edmestom, NY 13335
Epilepsy Foundation
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Phone: 516-739-7733
Address: 1500 Hempstead Turnpike, East Meadow, NY 11554 -
Epilepsy Association of Western New York
Phone: 716-883-5396
Email: info@epilepsywny.org
Address: 339 Elmwood Ave, Buffalo, NY 14222 -
Epilepsy Foundation of Metropolitan New York
Phone: 212-677-8550
Email: info@efmny.org
Address: 65 Broadway, Ste. 505, New York, NY 10006 -
Phone: 585-442-6420
Fax: 585-442-6964>br> Email: info@epiny.org
Address: 2 Townline Circle, Rochester, NY 14623
Foundation website: http://www.epilepsyfoundation.org/
Intellectual Disabilities
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Assisted Living Research Institute
1 (855) 221-9611
PO Box 45829
Seattle, WA 98145-0826
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Phone: 518-439-8311
Fax: 518-439-1893
Email: info@nysarc.org
Address: 393 Delaware Ave, Delmar, NY 12054 -
Phone: 212-366-4263
Address: 114 W. 17th St, New York NY, 10011
Learning Disabilities
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LD Resources Foundation, Inc
14 Horatio Street #5H
New York, N.Y 10014
Tel: 646-701-0000
Email: info@ldrfa.org -
Learning Disabilities Association of Central New York (LDACNY)
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Learning Disabilities Association of New York State
Phone: 518-608-8992
Fax: 212-947-9790
Email: statelda@ldanys.org
Address: 1190 Troy-Schenectady Rd, Building 1, Latham NY, 12110 -
The Learning Disabilities Association of WNY
2555 Elmwood Avenue,
Kenmore, New York 14217
Phone: 716-874-7200
Fax: 716-874-7205
Mental Health
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Phone: 716-226-6264
Email: namibuffalony@gmail.com
Address: PO Box 146, Buffalo, NY 14223-0146 -
Phone: (518) 588-6949
Email: namicapitalregionny@gmail.com -
Phone: 518-588-6949
Email: namicapitalregionny@gmail.com
Address: PO Box 397, West Sand Lake, NY 12196-0397 -
Phone: (716) 373-4602
Email: lennyliguori@oleanilc.org
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Phone: 315-255-7443
Email: 2maestros@bci.net -
Phone: 631-675-6831
Fax: 631-675-6831
Email: LighteOfLove@aol.com
Address: PO Box 524, Port Jefferson Station, NY 11776 -
Phone: 518-561-2685
Email: namiofcv@aol.com -
171 W Pulteney St.
Corning, NY 14830
(607) 962-7423 -
Phone: 518-336-0246
Email: namiccny@gmail.com Address: NAMI of Columbia County Support Group, PO Box 269. Valatie, NY 12184 -
Phone: 718-512-5269
Email: namieastflatbush@aol.com -
Phone: 607-273-2462
Email: namifl@hotmail.com
Address: P.O. Box 6544, Ithaca, NY 14851 -
Phone: 516-671-3957
Email: dundee11@verizon.net -
Hope/Mohawk Valley
Phone: 315-733-7115
Email: namihope@gmail.com -
Phone: 631-385-0754
Email: lansburyhunt@aol.com -
Phone: 845-206-9892
Email: namimidhudson@yahoo.com
Address: PO Box 787, Poughkeepsie, NY 12601 -
Montgomery, Fulton & Hamilton Counties
Phone: (518) 843-3261
Email: namimfh@gmail.com -
National Alliance on Mental Health (NAMI) - Syracuse
Phone: 315-487-2085
Email: namisyracuse@namisyracuse.org -
National Alliance on Mental Illness (NAMI) New York State
99 Pine Street, Suite 105
Albany, NY 12207Phone: (518) 462-2000
Helpline: (800) 950-3228 (NY Only)
Email: info@naminys.org -
Phone: 212-684-3365
Email: helpline@naminyc.org -
Phone: 718-477-1700
Email: info@namistatenisland.org
Address: 930 Willowbrook Rd, Building 41-A, Staten Island, NY 10314-4276 -
Ontario, Seneca & Yates Counties
Phone: 315-789-9068
Email: jhbentsen83@hotmail.com
Address: PO Box 952, Geneva, NY 14456-0952 -
Phone: 845-956-6264
Email: namiamico@warwick.net
Address: NAMI AMICO, Inc., P.O. Box 637, Middletown, NY 10940 -
Phone: 607-547-9544
Email: namiofotsego@gmail.com -
Phone: 845-363-1478
Email: namiputnam@gmail.com -
Phone: 516-326-0797
Fax: 516-437-5785
Email: namiqueensnassau@aol.com
Address: 1981 Marcus Ave, Suite C117, Lake Success, NY 11042 -
Phone: 585-423-1593
Email: pat.sine@namirochester.org -
Phone: 845-359-8787
Email: familya@namirockland.org
Address: P.O. Box 635, Orangeburg, NY 10962-0635 -
Phone: 518-306-6073
Email: jandahug@earthlink.net -
Phone: 518-377-2619
Email: rneville@nycap.rr.com
Address: PO Box 974, Schenectady, NY 12301-0974 -
Southwest Nassau
Phone: 516-623-7871
Email: Churn2dash@optonline.net
Address: NAMI LAMP/SW Nassau NY, 1712 Old Mill Rd, Merrick, NY 11566 -
Phone: 914-592-5458
Email: Sharonm@namiwestchester.org
Mental Health Association (MHA) in New York State
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Phone: 585-593-1991
Fax: 585-593-7104
Email: mhenry60@verizon.net
Address: 45 North Broad St, Wellsville, NY 14895 -
Phone: 716-372-0208
Fax: 716-372-0222
Email: bchew.mhacc@att.net
Address: 129 N. Union St., P.O. Box 833, Olean, NY 14760 -
Phone: 716-487-0616
Fax: 716-488-0546
Email: chautmha@hotmail.com
Address: 100 East 2nd St, 2nd Floor, Jamestown, NY 14701 -
Phone: 518-828-4619
Fax: 518-828-1196
Email: jrovitz@mhacg.org
Address: 713 Union St, Hudson, NY 12534 -
Phone: 716-886-1242
Fax: 716-881-6428
Email: info@eriemha.org
Address: 999 Delaware Ave, Buffalo, NY 14209 -
Phone: 518-521-3507
Toll-Free: 1-800-776-9992
Fax: 518-521-3760
Email: admin@mhafcny.org
Address: 7 Pearl St., Malone, NY 12953 -
Phone: 518-762-5332
Toll-Free: 1-800-734-5864
Fax: 518-762-6823
Email: jdykeman@frontiernet.net
Address: 307-309 Meadow St, Johnstown, NY 12095 -
Phone: 585-589-1158
Fax: 585-589-1158
Email: MhaOrleans@rochester.rr.com
Address: P.O. Box 269, Albion, NY 14411 -
Phone: 585-344-2611
Fax: 585-345-1418
Email: mhagenesee@2ki.net
Address: 25 Liberty St, Batavia, NY 14020 -
Phone: 315-788-0970
Fax: 315-788-8092
Email: info@mhajc.org
Address: 724 State Street, Watertown, New York 13601 -
Mental Health America Dutchess County
Phone: 845-473-2500
Fax: 845-473-4870
Email: info@mhadutchess.org
Address: 253 Mansion St, Suite 201, Poughkeepsie, NY 12601 -
Mental Health Association in Essex County
Phone: 518-962-2077
Toll-Free: 1-800-440-8074
Fax: 518-962-8233
Email: sryan@mhaessex.org
Address: 6090 State Route 9N, Westport, NY 12993 -
Phone: 516-489-2322
Fax: 516-489-2784
Email: help@mhanc.org
Address: 16 Main St, Hempstead, NY 11550 -
Phone: 212-254-0333
Toll-Free: 1-800-543-3638
Fax: 212-964-7302
Email: helpdesk@mhaofnyc.org
Address: 50 Broadway, 19th Floor, New York, NY 10004 -
Phone: 716-433-3780
Fax: 716-433-3847
Email: mhaniag@pcom.net
Address: 36 Pine St, Lockport, NY 14094 -
Phone: 315-445-5606
Fax: 315-445-1828
Email: requests@mha-oc.org
Address: 6493 Ridings Rd, Ste. 112-114, Syracuse, NY 13206 -
Phone: 845-342-2400
Toll-Free: 1-800-832-1200
Fax: 845-343-9665
Email: nadia@mhaorangeny.com
Address: 73 County Highway 108, Middletown, NY 10940 -
Phone: 315-349-3533
Fax: 315-349-3533
Email: mhaosw@scsinter.net
Address: 70 Bunner St, Oswego, NY 13126 -
Phone: 845-278-7600
Fax: 845-278-0600
Email: info@mhaputnam.org
Address: Brewster Towne Center, 1620 Route 22, Brewster, NY 10509 -
Phone: 585-325-3145
Fax: 585-325-3188
Email: pwoods@mharochester.org
Address: 320 N. Goodman St, Rochester, NY 14607 -
Phone: 845-267-2172
Fax: 845-267-2169
Email: Info@Mharockland.org
Address: 140 Route 303, Suite A, Valley Cottage, NY 10989 -
Schuyler County
Phone: 607-535-8288
Fax: 607-535-8284
Email: rschockner@co.schuyler-ny.us
Address: 106 South Perry St, Suite 4, Watkins Glen, NY 14891 -
Phone: 607-771-8888
Fax: 607-771-8892
Email: info@yourmha.com
Address: 153 Court St, Binghamton, NY 13901 -
Suffolk County Association for Mental Health and Wellness
Phone: 631.471.7242
Email: helpline@mhaw.org
Address: 939 Johnson Avenue, Ronkonkoma, NY 11779 -
Phone: 607-273-9250
Fax: 607-272-5343
Email: info@mhaedu.org
Address: 614 West State St, Ithaca, NY 14850 -
Phone: 845-336-4747
Fax: 845-336-0192
Email: ependegar@mhainulster.com
Address: P.O. Box 2304, Kingston, NY 12402 -
Phone: 518-747-2284
Fax: 518-747-2253
Email: peter@wwamh.org
Address: 3043 State Route 4, Hudson Falls, NY 12839 -
Phone: 914-345-5900
Fax: 914-347-8859
Email: help@mhawestchester.org
Address: 2269 Saw Mill River Rd, Bldg 1A, Elmsford, NY 10523
Association website: http://www.mhanys.org/index.php
Phone: 518-434-0439
Toll-Free: 1-800-766-6177
Fax: 518-427-8676
Email: mhanys@mhanys.org
Multiple Sclerosis Society
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Phone: 631-864-8337
Fax: 631-864-8342
Email: jane.reilly@nmss.org
Address: 40 Marcus Dr, Suite 100, Melville, NY 11747 -
Multiple Sclerosis Society - Upstate New York
Phone: 585-271-0801
Fax: 585-442-2817
Email: nyr@nmss.org
Address: 1650 South Ave, Suite 100, Rochester, NY 14620
Society website: www.nationalmssociety.org
Muscular Dystrophy Association Clinics
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Albany Medical Center Hospital
Clinic Phone: 518-262-5226
Scheduling Phone: 518-262-5226
Address: Department of Neurology, M-70 47, New Scotland Ave, Albany, NY 12208
Director: Matthew J. Murnane, M.D., Neurology - Adult
Physicians: Rose Domingo, M.D., Neurology - Adult; Andrew Dubin, M.D., Physiatry - Pediatric; Charles Nichter, M.D., Neurology - Pediatric; James Wymer, M.D., Ph.D., Neurology - Adult
Team Members: Clinic Coordinator -
Buffalo General Medical Center - General Clinic
Clinic Phone: 716-932-6080
Scheduling Phone: 716-932-6080
Address: 100 High St, Buffalo, NY 14203
Directors: Nicholas J. Silvestri, M.D., Neurology - Pediatric; Gil I. Wolfe, M.D., F.A.A.N., Neurology
Physicians: Melissa Azaula, M.D., Physiatry; Susan Kerr, M.D., Neurology - Pediatric;
Team Members: Social Worker, Respiratory Therapist, Physical Therapist, Genetic Counselor -
Columbia University Medical Center (General & ALS Clinic)
Clinic Phone: 212-305-1319, 212-342-0263
Scheduling Phone: 212-305-1319, 212-342-0263
Address: 710 W. 168th St, 3rd Floor, New York, NY 10032
Directors: Michio Hirano, M.D., Neurology - Adult; Hiroshi Mitsumoto, M.D., Neurology - Adult
Physicians: Thomas H. Brannagan III, M.D., Neurology - Adult; Louis Weimer, M.D., Neurology - Adult; Jacinda Sampson, M.D., Neurology - Adult; Neil Schneider, M.D., Ph.D., Neurology - Adult; Lewis P. Rowland, M.D., Neurology - Adult; Robert C. Basner, M.D., Pulmonology - Adult
Team Members: DME Provider, Nurse Practitioner, Physical Therapist, Social Worker, Speech Language Pathologist -
Columbia University Medical Center (Pediatrics)
Clinic Phone: 212-305-1319, 212-342-0263
Scheduling Phone: 212-342-0263
Address: 180 Ft. Washington Ave, 5th Floor, New York, NY 10032
Director: Darryl Devivo, M.D., Neurology - Pediatric
Physicians: Douglas Sproule, M.D., Neurology - Pediatric; Louis Weimer, Neurology - Adult; Andrei Constantiescu, M.D., Ph.D.,; Claudia Chiriboga, M.D., M.P.H., Neurology - Pediatric
Team Members: Genetic Counselor, Nurse Practitioner, Physical Therapist, Respiratory Therapist, Social Worker, Speech Language Pathologist -
Clinic Phone: 716-250-2000
Scheduling Phone: 716-250-2000
Address: 3980 Sheridan Dr, 6th Floor, Amherst, NY 14226
Director: Tomas Holmlund, M.D., Neurology
Physicians: Bennett Myers, M.D., Neurology; Luisa F. Rojas, M.D., Electromyography
Team Members: Respiratory Therapist, Speech Language Pathologist, Physical Therapist, Occupational Therapist, Nurse Practitioner -
Joan & Sanford I. Weill Medical College of Cornell University
Clinic Phone: 646-797-8971
Scheduling Phone: 646-797-8917
Address: 525 East 68th St, 6th Floor, New York, NY 10021
Director: Dale J. Lange, M.D., Neurology - Adult
Physician: Alexander Shtilbans, Neurology - Adult
Team Members: DME Provider, Nurse, Occupational Therapist, Physical Therapist, Speech Language Pathologist -
Lewis Golub MDA/ALS Clinic at St. Peter's Hospital
Clinic Phone: 518-525-6998
Scheduling Phone: 518-525-1629
Address: 19 Warehouse Row, Albany, NY 12205
Director: Roberta Miller, M.D.,
Team Members: Case Manager, Clinic Coordinator, Occupational Therapist, Physical Therapist, Social Worker, Speech Language Pathologist -
Clinic Phone: 718-405-8140
Scheduling Phone: 718-405-8140
Address: 1515 Blondell Ave, Bronx, NY 10461
Directors: Beth Stein, M.D., Neurology; Alfred J. Spiro, M.D., Neurology -
NYU Langone Medical Center Ambulatory Care Center - Adult Clinic
Clinic Phone: 212-263-6350
Scheduling Phone: 212-263-6350
Address: 240 East 38th St, 15th Floor, New York, NY 10016
Directors: Mary Lynn Chu, M.D., Neurology - Pediatric; Jeffrey M. Cohen, M.D., Physiatry -
NYU Langone Medical Center Hospital for Joint Diseases - Pediatric Clinic
Clinic Phone: 212-263-6350
Scheduling Phone: 212-263-6350
Address: 301 E 17th St, New York City, NY 10003
Directors: Mary Lynn Chu, M.D., Neurology; Jeffrey M. Cohen, M.D., Neurology -
St. Charles Hospital & Rehabilitation Center
Clinic Phone: 631-474-6300
Scheduling Phone: 631-474-6425
Address: 200 Belle Terre Rd, Port Jefferson, NY 11777
Directors: Jennifer J. Semel, M.D., Physiatry; Scott McWilliams, M.D., Neurology - Adult
Physician: Jennifer Gray, D.O., Physiatry -
Clinic Phone: 713-270-2051
Scheduling Phone: 718-270-3215
Address: 450 Clarkson Ave, Brooklyn, NY 11203
Directors: Yaacov Anziska, M.D., Neurology; Paul A. Pipia, M.D., Physiatry
Physician: Masha Mehrazin, M.D., Neurology
Team Member: Occupational Therapist -
SUNY Upstate Medical University - General Adult Clinic
Clinic Phone: 315-464-4243
Scheduling Phone: 315-464-4243
Address: 90 Presidential Plaza, 4th Floor, Syracuse, NY 13210
Directors: Deborah Y. Bradshaw, M.D., Neurology - Adult; Jerry M. Shefner, M.D., Ph.D., Neurology - Adult
Physicians: Klaus Werner, M.D., Ph.D., Neurology - Pediatric; Anuradha K. Duleep, M.D., Neurology - Adult
Team Members: Clinic Coordinator, Nurse, Occupational Therapist, Physical Therapist, Speech Language Pathologist -
SUNY Upstate Medical University - Pediatric Clinic
Clinic Phone: 315-464-4243
Scheduling Phone: 315-464-4243
Address: 90 Presidential Plaza, 4th Floor, Syracuse, NY 13210
Director: Jeremy M. Shefner, M.D., Ph.D., Neurology - Adult
Physician: Klaus Werner, M.D., Ph.D., Neurology - Pediatric
Team Members: Clinic Coordinator, Nurse, Occupational Therapist, Physical Therapist, Speech Language Pathologist -
University of Rochester Medical Center
Clinic Phone: 585-275-2559
Address: Strong Memorial Hospital, 601 Elmwood Ave, P.O. Box 673, Rochester, NY 14642
Directors: Emma Ciafaloni, M.D., Neurology - Pediatric; Rabi Tawil, M.D., Neurology - Adult
Physicians: Amy Chen, M.D., Neurology - Adult; Chad Heatwole, M.D., Neurology - Adult; Charles Thornton, M.D., Neurology - Adult
Team Members: Respiratory Therapist, Speech Language Pathologist, Physical Therapist, Nurse -
White Plains Hospital & Medical Center
Clinic Phone: 914-681-1128
Scheduling Phone: 914-681-1128
Address: 41 East Post Rd, White Plains, NY 10601
Director: Stanley B. Holstein, M.D., Neurology
Physician: Janet Pomerantz, M.D., Physiatry
MDA maintains a network of 200 specialized clinics across the United States and in Puerto Rico. Most MDA clinics are located in teaching hospitals, and many MDA clinic directors are university medical school professors as well as practicing physicians. MDA clinics are at the forefront of research and treatment methods; some clinics also serve as sites for clinical trials of the latest experimental therapies.
Muscular Dystrophy Association Offices
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Phone: 516 358-1012
Email: lakesuccess@mdausa.org
Address: 5 Dakota Dr, #101, Lake Success, NY 11042 -
Muscular Dystrophy Association - Rochester and Buffalo
Phone: 585-424-6560
Email: rochester@mdausa.org
Address: 1425 Jefferson Rd #19, Rochester, NY 14623
Association website: http://mda.org/
Physical & Mobility
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SUNY Upstate Medical Center - ALS Clinic
Clinic Phone: 315-464-4243
Scheduling Phone: 315-464-4243
Address: 90 Presidential Plaza, 4th Floor, Syracuse, NY 13210
Director: Jeremy M. Shefner, M.D., Ph.D., Neurology - Adult
Physician: Anuradha K. Duleep, M.D., Neurology - Adult
Team Members: Clinic Coordinator, Nurse, Occupational Therapist, Physical Therapist, Speech Language Pathologist
Spinal Cord Injury
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Phone: 914-597-2500
Address: 785 Mamoroneck Ave, White Plains, NY 10605 -
Helen Hayes Hospital Center for Rehabilitation Technology
Phone: 888-707-3422
Address: Route 9W, West Haverstraw, NY 10993 -
Phone: 800-637-4624
Address: 1468 Madison Ave, New York, NY 10029 -
The Rochester Spinal Association is dedicated to enhancing the quality of life of all people living with spinal cord disability.
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Sunnyview Rehabilitation Hospital
Phone: 518-382-4500
Address: 1270 Belmont Ave, Schenectady, NY 12308 -
Buffalo Chapter
Phone: 716-857-3338
Fax: 716-855-3395
Address: 130 South Elmwood Ave, Suite 641, Buffalo, NY 14202 – 2487
New York City Chapter
Phone: 212-807-3163
Fax: 212-807-4018
Address: 245 West Houston St, New York, NY 10014 -
United Spinal Association New York City Chapter
Phone: 1-866-692-7242
Email: info@nycspinalcord.org
Address: P.O. Box 286444, Yorkville Station, New York, NY 10128
Tourette Syndrome Association
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Greater New York State Chapter
Phone: 716-839-4430
Email: conners@roadrunner.com -
Phone: 914-378-5025
Email: info@tsa-nyhv.org -
Phone: 516-876-6947
Email: LongIslandTSA@aol.com -
Phone: 646-395-0162
Email: chapter@tsa-nyc.org
Association website: http://tsa-gnys.org/