National Disability Organizations

Please email frdat@niagara.edu if you find an improper link or would like to add a resource to the list.

ADD/ADHD

  • ADHD Justice Support Center

    Attention Deficit-Hyperactivity Disorderor ADHD- you may have heard of it. You may be familiar with the connection between ADHD and academic struggles, professional challenges, even relationship issues- but what many people are not aware of is the link between ADHD & difficulties with the criminal justice system.

  • Attention Deficit Disorder Association (ADDA)

    ADDA provides information, resources and networking opportunities to help adults with Attention Deficit Hyperactivity Disorder lead better lives.

  • Center for Children and Families: Florida International University

    The Center for Children and Families is an FIU Preeminent Program and a world-class clinical research center dedicated to improving the lives of children and families struggling with mental health problems.

  • Child Mind Institute: School Success Kit for Kids with ADHD

    Tools and strategies to help manage time, stay focused, and handle homework

  • Children & Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)

    CHADD has three current priority objectives: (1) to serve as a clearinghouse for evidence-based information on AD/HD, (2) to serve as a local face-to-face family support group for families and individuals affected by ADHD, and (3) to serve as an advocate for appropriate public policies and public recognition in response to needs faced by families and individuals with ADHD.

  • Recovery.org

    Whether you're seeking an ADHD center for yourself or a loved one who is struggling with this condition, this guide covers some of the reasons why an upscale ADHD center is an excellent choice for those who need to get their life back on track.

  • Understood.org

    Parents want the best for their children. For the first time ever, 15 nonprofit organizations have joined forces to support parents of the one in five children with learning and attention issues throughout their journey. With the right support, parents can help children unlock their strengths and reach their full potential. With state-of-the-art technology, personalized resources, free daily access to experts, a secure online community, practical tips and more, Understood aims to be that support.

Adult Services

  • Administration for Community Living

    The Administration for Community Living was created around the fundamental principle that older adults and people of all ages with disabilities should be able to live where they choose, with the people they choose, and with the ability to participate fully in their communities.

  • National Institute on Aging - National Institutes of Health

    As growing numbers of people live well into their 80s and 90s, age-related diseases and conditions—and the disability often associated with them—continue to be a major public health concern. For example, Alzheimer's disease, cardiovascular disease, cancer, and diabetes remain widespread among older Americans. In addition, many older Americans suffer from multiple chronic health conditions, complicating treatment and impairing quality of life.

Advocacy

  • Advocating Change Together (ACT)

    There is a disparity between the rights people with disabilities have, and the rights they are aware of and actually able to exercise. By developing leaders in the disability rights movement, facilitating workshops, creating training materials, and connecting people through a statewide network, ACT works to narrow that disparity.

  • American Association of People with Disabilities (AAPD)

    The American Association of People with Disabilities is a convenerconnector, and catalyst for change, increasing the political and economic power of people with disabilities.

  • Center for Self-Determination

    The Center for Self-Determination was formed as a non-profit organization in 2000, designed to continue the progress made during the period of national growth which was originally spawned by a grant from the Robert Wood Johnson Foundation (RWJ) in the late 1990’s. After an initial grant in 1993 given to Monadnock Developmental Services in Keene, New Hampshire, RWJ decided to extended grants to 19 states.

  • Disability Rights Education & Defense Fund

    DREDF is dedicated to improving the lives of people with disabilities through legal advocacy, training, education, and public policy and legislative development. 

  • National Disability Rights Network - Protection & Advocacy for Individuals with Disabilities

  • Self Advocates Becoming Empowered (SABE USA)

    Our Mission: To ensure that people with disabilities are treated as equals and that they are given the same decisions, choices, rights, responsibilities, and chances to speak up to empower themselves; opportunities to make new friends, and to learn from their mistakes.

Alzheimer's Disease

  • Alzheimer’s Association

    Formed in 1980, the Alzheimer's Association is the leading voluntary health organization in Alzheimer's care, support and research.

  • Alzheimer’s Disease Education & Referral Center (ADEAR) - National Institutes of Health

    Alzheimer’s disease is the most common cause of dementia in older adults. It is a progressive brain disorder that slowly destroys memory and thinking skills. It is not a normal part of aging. Learn more about the disease, and get news, tips, and resources for caregivers and health care professionals.

  • Alzheimer’s Foundation of America

    The mission of the Alzheimer’s Foundation of America (AFA) is to provide support, services and education to individuals, families and caregivers affected by Alzheimer’s disease and related dementias nationwide, and fund research for better treatment and a cure.

Anxiety Disorders

  • Anxiety & Depression Association of America (ADAA)

    ADAA is the leader in education, training, and research for anxiety, OCD, PTSD, depression, and related disorders.

  • Anxiety.org

    The dedicated team at Anxiety.org is committed to making mental health information accessible, inclusive, easy-to-find, and easy-to-understand. We want anyone suffering from an anxiety disorder to have access to all the resources they need to understand and overcome their condition. This website provides the latest and most relevant information by working directly with distinguished doctors, therapists, scientists, and specialists to keep you on the cutting-edge of research and advancements in the field, while keeping our content approachable for the average reader. Our goal is to bridge the understanding gap that exists between mental health professionals and those actually dealing with anxiety disorders.

  • International OCD Foundation

    The mission of the International OCD Foundation is to help individuals with obsessive compulsive disorder (OCD) to live full and productive lives. The Foundation's aim is to increase access to effective treatment, end the stigma associated with mental health issues, and foster a community for those affected by OCD and the professionals who treat them.

Arthritis

  • Arthritis Foundation

    The Arthritis Foundation is boldly pursuing a cure for America's #1 cause of disability while championing the fight against arthritis with life-changing resources, science, advocacy and community connections.

  • Arthritis Program at the Centers for Disease Control and Prevention

    The Centers for Disease Control and Prevention (CDC) works to protect the health of 54.4 million men and women with arthritis in the United States. Our vision is one where men and women with arthritis live the fullest life possible, with the ability to pursue valued life activities with minimal pain.

Assistive Technology

Autism Spectrum

  • Asperger Autism Spectrum Education Network (ASPEN)

    ASPEN provides families and individuals whose lives are affected by Autism Spectrum Disorders (Asperger Syndrome, Pervasive Developmental Disorder-NOS, High Functioning Autism), and Nonverbal Learning Disabilities with education, support, and advocacy.

  • Autism Information Center - Center for Disease Control and Prevention

    Autism spectrum disorder (ASD) is a developmental disability that can cause significant social, communication and behavioral challenges. CDC is committed to continuing to provide essential data on ASD, search for factors that put children at risk for ASD and possible causes, and develop resources that help identify children with ASD as early as possible.

  • Autism Online

    Get The Best Treatment. Services: Assessments, At Home Behavior Therapy, Parent Training, ABA Therapy, Autism Workshops, RBT Training, Treatment Planning.

  • Autism Society

    The nation’s leading grassroots autism organization, Autism Society exists to improve the lives of all affected by autism by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.

  • Autism Speaks

    Autism Speaks has grown into the world's leading autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families.
  • Autism Spectrum Disorders - National Institutes of Health

    Autism spectrum disorder (ASD) is a developmental disorder that affects communication and behavior. Although autism can be diagnosed at any age, it is said to be a “developmental disorder” because symptoms generally appear in the first two years of life.

  • Autistic Self Advocacy Network (ASAN)

    ASAN seeks to advance the principles of the disability rights movement with regard to autism and believes that the goal of autism advocacy should be a world in which Autistic people enjoy the same access, rights, and opportunities as all other citizens.

  • Doug Flutie, Jr. Foundation

    To help people and families affected by autism live life to the fullest.

  • Families for Early Autism Treatment (FEAT)

    Families for Early Autism Treatment, Inc. (FEAT) is a non-profit organization of parents, family members, and treatment professionals, designed to help families with children of all ages who have an Autism Spectrum Disorder (ASD). It offers a network of support where families can meet each other to discuss issues surrounding autism and treatment options
  • Guide For Home Modifications for Autism and Sensory Processing Disorder

  • National Autism Association

    Our programs provide tangible tools, education and training to families, schools and law enforcement agencies in all 50 states.

  • National Autism Center

    (877) 313-3833

    41 Pacella Park Drive, Door 2

    Randolph, MA 02368

  • National Autism Resources

    77 Solano Square #308
    Benicia, CA 94510

    Toll Free: 877-249-2393
    Fax: 877-259-9419
    By email: Click Here to Contact Customer Service

  • Sleepopolis. Sleep and Autism

    Sleep-related issues are problematic for anyone who suffers from them. They run the gamut from short-term trouble falling asleep to full-blown sleep disorders that persist for years. Sleep problems can be particularly troublesome for people with autism spectrum disorder, also known as ASD.

  • The Sleep Help Institute

    Autism spectrum disorder (ASD) is a catch-all for autism, pervasive developmental disorder not otherwise specified (PDD-NOS), and Asperger syndrome. ASD affects about 2 million individuals in the United States, and is 4.5 times more common in boys than in girls.

  • TUCK-Autism Spectrum Disorder (ASD) and Sleep

    We’ll look at some of the most common sleep issues among adults and children with ASD, as well as some suitable treatment options and tips for managing ASD and sleep on a regular basis.

Blind/Vision Loss

  • American Council of the Blind (ACB)

    ACB and its affiliates have been at the forefront of the creation of policies that have shaped the opportunities that are now available to people with disabilities in our country. ACB has also effectively collaborated with Vision Rehabilitation Service providers to develop the principles and values that should be at the heart of providing adjustment and placement services to people who are blind.

  • American Federation for the Blind (AFB)

    Founded in 1921, AFB has spent nearly a century ensuring that individuals who are blind or visually impaired have access to the information, technology, education, and legal resources they need to live independent and productive lives.

  • Foundation Fighting Blindness

    The Foundation drives the research of prevention, treatments, and cures for people affected by retinal degenerative diseases.

  • Laser Eye Surgery HUB

    We have compiled a listing of resources based on specific needs and situations. From help adapting to life with low or no vision, to financial assistance for the vision-impaired, these resources can provide assistance and helpful insights for easier daily living and a higher quality of life.

  • Lighthouse International

    Founded in 1905 by Winifred and Edith Holt, the Lighthouse quickly became a pioneer in the field of vision rehabilitation. Today it is a leading worldwide resource in helping people overcome the challenges of vision loss.

  • My Blind Spot

    My Blind Spot’s mission is to advance equal access and promote understanding, respect, and opportunity for people who are blind, visually impaired and print disabled.

  • National Eye Institute

    E-mail: 2020@nei.nih.gov(link sends e-mail)
    Phone: (301) 496-5248—English and Spanish
    Mail: National Eye Institute
    Information Office
    31 Center Drive MSC 2510
    Bethesda, MD 20892-2510

  • National Family Association for Deaf-Blind (NFADB)

    NFADB is the largest national nonprofit organization serving the deaf-blind community.

  • National Federation of the Blind (NFB)

    NFB is the oldest, largest, and most influential nationwide membership organization of blind people in the United States. Founded in 1940, NFB advocates for the civil rights and equality of blind Americans, and develops innovative education, technology, and training programs to provide the blind and those who are losing vision with the tools they need to become independent and successful.

  • National Library Service for the Blind & Physically Handicapped (NLS)

    Through a national network of cooperating libraries, NLS administers a free library program of braille and audio materials circulated to eligible borrowers in the United States by postage-free mail.

Brain Injuries/Tumors

  • American Brain Tumor Organization

    Founded in 1973, ABTA was the first national nonprofit organization dedicated solely to brain tumors. For 40 years, ABTA has been providing comprehensive resources that support the complex needs of brain tumor patients and caregivers, as well as the critical funding of research in the pursuit of breakthroughs in brain tumor diagnosis, treatment and care.

  • Brain Injury Association of America (BIAA)

    The mission of BIAA is to advance brain injury prevention, research, treatment and education and to improve the quality of life for all people affected by brain injury.

  • Brain Trauma Foundation

    For over 30 years, Brain Trauma Foundation has been conducting innovative clinical research and developing evidence-based guidelines that improve outcomes for the millions of people who suffer from traumatic brain injuries every year.

  • Brainline

    All about brain injury and PTSD

  • National Brain Tumor Society

    The National Brain Tumor Society’s strategic initiatives and funded programs aim to improve an understanding of all brain tumors to transform research into new and effective treatments, as quickly as possible.

  • National Institute of Neurological Disorders and Stroke (National Institutes of Health)

    The mission of NINDS is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease.

  • Ohio State University Wexner Medical Center – Ohio Valley Center on Brain Injury Prevention and Rehabilitation

    Improving the lives of people who experience traumatic brain injury, and their families and communities, by creating and disseminating new knowledge about the course, treatment and outcomes relating to their condition.

  • TraumaticBrainInjury.com

    Our Mission is to provide support and advocacy at the earliest possible moment.  We work with the families of those disabled by serious and permanent disabilities, such as cerebral palsy, brain injury, stroke, and spinal cord injury.

Children's Services

  • Birth Injury Justice Center

    Many birth injuries are the result of medical negligence before, during and after labor and delivery. Learning the causes, signs and treatments for birth injuries can empower and guide you as you take action to help your child.

  • Child Development - Centers for Disease Control and Prevention

    The early years of a child’s life are very important for his or her health and development. Parents, health professionals, educators, and others can work together as partners to help children grow up to reach their full potential.

  • Child Welfare Information Gateway

    Child Welfare Information Gateway promotes the safety, permanency, and well-being of children, youth, and families by connecting child welfare, adoption, and related professionals as well as the public to information, resources, and tools covering topics on child welfare, child abuse and neglect, out-of-home care, adoption, and more.

  • ChildHelp USA

    Helping victims of child abuse is more than just a desire, it is our lifetime commitment. This commitment began when our founders, two young Hollywood actresses, encountered 11 homeless orphans abroad, and all of their lives were forever changed.

  • Children’s Hospice International

    Children’s Hospice International (CHI) is a non-profit organization established in 1983 that has pioneered and promoted the idea that critically ill children should have access to hospice/palliative care along with curative care from the time their life-threatening illness has been diagnosed.
  • Girls and Boys Town

    Our Mission: Creating opportunities for youth to Shine® – to grow and develop into responsible citizens, able to contribute to family and community life in the spirit of peace, dignity, tolerance, equality and solidarity with others.

  • National Institute of Child Health & Human Development - National Institutes of Health

    Healthy pregnancies. Healthy children. Healthy and optimal lives

  • Office of Special Education and Rehabilitative Services (OSERS)

    To improve early childhood, educational, and employment outcomes and raise expectations 
    for all people with disabilities, their families, their communities, and the nation.

  • Tufts University Child & Family Web Guide

    The internet offers an abundance of information on caring for children; however, erroneous and potentially harmful information can exist alongside evidence-based practice and research. Therefore, the Child & Family WebGuide seeks to provide parents and families an accessible, thoroughly reviewed collection of credible and authoritative websites that they can trust. All websites on the site have been systematically reviewed and contain valuable information and support on a variety of topics of interest.

Deaf/Hard of Hearing

  • Alexander Graham Bell Association for the Deaf & Hard of Hearing

    The Alexander Graham Bell Association for the Deaf and Hard of Hearing helps families, health care providers and education professionals understand childhood hearing loss and the importance of early diagnosis and intervention. Through advocacy, education, research and financial aid, AG Bell helps to ensure that every child and adult with hearing loss has the opportunity to listen, talk and thrive in mainstream society.
  • American Society for Deaf Children (ASDC)

    ASDC is committed to empowering diverse families with deaf* children and youth by embracing full access to language-rich environments through mentoring, advocacy, resources, and collaborative networks.

    *ASDC uses the term “deaf” to be inclusive of various hearing levels, including those who are seen as, or identify as Deaf, deaf, or hard of hearing. 

  • American Speech-Language-Hearing Association (ASHA)

    ASHA is the national professional, scientific, and credentialing association for more than 173,070 members and affiliates who are audiologists, speech-language pathologists, speech, language, and hearing scientists, audiology and speech-language pathology support personnel, and students.

  • Better Hearing Institute

    Trusted voice on hearing health care for products innovation, patient safety and education, and public policy.

  • Collaborative for Communication Access via Captioning (CCAC)

    CCAC is the only official non-profit organization nationally and internationally with a sole focus on advocacy for captioning inclusion.

  • Communication Service for the Deaf (CSD)

    CSD is about creating change for deaf people by cultivating opportunities for success.

  • Hands & Voices

    H&V is a non-profit, parent-driven organization dedicated to supporting families of children who are deaf or hard of hearing. They are non-biased about communication methodologies and believe that families can make the best choices for their child if they have access to good information and support. Their membership includes families who communicate manually and/or orally. From American Sign Language to cochlear implants, H&V represents people from all different approaches to, and experiences with, deafness or hearing loss.

  • House Ear Institute

    Welcome to the House Ear Institute! HEI is a 501-(c)3 private nonprofit foundation with a threefold mission of otology Education, Research, and Global Health, “so all may hear.”

  • National Association of the Deaf (NAD)

    NAD is the nation's premier civil rights organization of, by, and for deaf and hard of hearing individuals in America. Established in 1880, the NAD was shaped by deaf leaders who believed in the right of the American deaf community to use sign language, to congregate on issues important to them, and to have its interests represented at the national level. These beliefs remain true to this day, with American Sign Language as a core value.

  • National Cued Speech Association (NCSA)

    NCSA was formed in 1982 to serve the needs of parents and special educators working with children who are deaf and hard of hearing. NCSA is primarily an advocacy organization, and focuses on outreach, family and educator support, as well as community-based education in the form of Cue Camps and sponsored workshops. The NCSA also provides instructor certification for teaching Cued Speech classes.

  • National Institute on Deafness and Other Communication Disorders (NIDCD)

    800-241-1044  

    NIDCD Office of Health Communication and Public Liaison
    31 Center Drive, MSC 2320
    Bethesda, MD 20892-2320

    E-mail: nidcdinfo@nidcd.nih.gov

  • National Technical Institute for the Deaf (RIT/NTID)

    Coming to RIT/NTID is about getting access to opportunities and people who will support you and challenge you to be your best. It's about getting experiences that will shape you and take you where you want to go.

  • Registry of Interpreters for the Deaf (RID)

    A national membership organization, RID plays a leading role in advocating for excellence in the delivery of interpretation and transliteration services between people who use sign language and people who use spoken language. In collaboration with the Deaf community, RID supports and encourages the growth of the profession through the establishment of a national standard for qualified sign language interpreters and transliterators, ongoing professional development and adherence to a code of professional conduct.

Dementia

  • Huntington’s Disease Society of America (HDSA)

    Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities usually during their prime working years and has no cure. 

Developmental Disabilities

  • American Association on Intellectual and Developmental Disabilities (AAIDD)

    AAIDD promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.

  • Angelman Syndrome Foundation

    The Angelman Syndrome Foundation's mission is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families and other concerned parties.

  • Association of University Centers on Disabilities

    A network of interdisciplinary centers advancing policy and practice for and with individuals with developmental and other disabilities, their families, and communities

  • Children's Tumor Foundation

    The Children's Tumor Foundation is a not-for-profit organization dedicated to finding effective treatments for the millions of people worldwide living with neurofibromatosis (NF).

  • International Rett Syndrome Foundation (IRSF)

    The core mission of IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services. IRSF is the largest private source of funds for biomedical and clinical research on Rett syndrome.

  • National Association of Councils on Developmental Disabilities (NACDD)

    NACDD is the national association for the 56 Councils on Developmental Disabilities (DD Councils) across the United States and its territories. The DD Councils receive federal funding to support programs that promote self-determination, integration and inclusion for all people in the United States with developmental disabilities.

  • National Association of State Directors of Developmental Disabilities Services

    The NASDDDS mission is to assist member state agencies in building person-centered systems of services and supports for people with intellectual and developmental disabilities and their families.

  • National Center on Birth Defects and Developmental Disabilities (NCBDDD)

    The National Center on Birth Defects and Developmental Disabilities (NCBDDD) strives to advance the health and well-being of our nation’s most vulnerable populations.

  • National Fragile X Foundation (NFXF)

    NFXF unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X.

  • National Organization on Fetal Alcohol Syndrome (NOFAS)

    NOFAS educates the public, practitioners, and policymakers about the risk of alcohol use during pregnancy and FASD , the leading known preventable cause of brain damage, developmental disabilities, and birth defects, and a leading known cause of learning disabilities and behavioral problems in children, adolescents, and adults.
  • Neurofibromatosis Network

    The mission of the NF Network is to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, providing outreach through education and awareness, while offering hope and support to those affected by NF.
  • Prader-Willi Syndrome Association (PWSA)

    PWSA is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome.

  • Special Olympics International

    The mission of Special Olympics is to provide year-round sports training and athletic competition in a variety of Olympic-type sports for children and adults with intellectual disabilities, giving them continuing opportunities to develop physical fitness, demonstrate courage, experience joy and participate in a sharing of gifts, skills and friendship with their families, other Special Olympics athletes and the community.

  • The Arc

    The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.
  • Williams Syndrome Association (WSA)

    WSA was formed in 1982 by, and for, families of individuals with Williams syndrome. WSA is the most comprehensive resource for people and families living with Williams syndrome as well as doctors, researchers and educators.

Diabetes

  • American Diabetes Association

    The moving force behind the work of the American Diabetes Association is a network of more than 565,000 volunteers, a membership of more than 540,000 people with diabetes, their families and caregivers, a professional society of nearly 20,000 health care professionals, as well as more than 400 staff members.

  • Diabetes Public Health Resource - Centers for Disease Control and Prevention

    CDC’s Division of Diabetes Translation believes in the power of science to turn the tide in the diabetes epidemic. We are dedicated to putting that science into action through programs and policies that help people prevent type 2 diabetes and improve the health of everyone living with diabetes. 

  • Effects of Diabetes on Oral Health

    More than 30.2 million Americans (9.4 percent of the population) have diabetes and 84.1 million live with prediabetes. By definition, diabetes (diabetes mellitus) is a group of serious diseases that result in high blood sugar (glucose). The diseases are typically kept under control with a balanced diet, exercise, insulin, and other medications that control blood sugar levels.

  • Juvenile Diabetes Research Foundation

    At JDRF, we're leading the fight against type 1 diabetes (T1D) by funding research, advocating for policies that accelerate access to new therapies, and providing a support network for millions of people around the world impacted by T1D.

  • National Diabetes Information Clearinghouse (NDIC) - National Institutes of Health

    Diabetes is a disease that occurs when your blood glucose, also called blood sugar, is too high. Over time, having too much glucose in your blood can cause health problems, such as heart disease, nerve damage, eye problems, and kidney disease. You can take steps to prevent diabetes or manage it.

Down Syndrome

Education/Therapy

  • American Occupational Therapy Association, Inc. (AOTA)

    AOTA is the national professional association established in 1917 to represent the interests and concerns of occupational therapy practitioners and students of occupational therapy and to improve the quality of occupational therapy services.

  • American Physical Therapy Association (APTA)

    APTA is an individual membership professional organization representing more than 88,000 member physical therapists (PTs), physical therapist assistants (PTAs), and students of physical therapy. APTA seeks to improve the health and quality of life of individuals in society by advancing physical therapist practice, education, and research, and by increasing the awareness and understanding of physical therapy's role in the nation's health care system.

  • American Therapeutic Recreation Association (ATRA)

    The vision of ATRA is to be the premiere professional membership association representing recreational therapists, consumers and stakeholders.

  • Council for Exceptional Children (CEC)

    CEC is the largest international professional organization dedicated to improving the educational success of individuals with disabilities and/or gifts and talents. CEC advocates for appropriate governmental policies, sets professional standards, provides professional development, advocates for individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.

  • Freedom Service Dogs of America

    At Freedom Service Dogs, we unleash the potential of shelter dogs by transforming them into custom-trained, life-changing assistance dogs for people in need. Our clients include children, veterans and active duty military, and other adults. Their disabilities include autism, traumatic brain injury, cerebral palsy, spinal cord injuries, muscular dystrophy, multiple sclerosis, and post-traumatic stress disorder.

  • National Association of Private Special Education Centers

    NAPSEC member programs provide educational therapeutic services to both publically and privately placed individuals that are not able to be successfully educated in the regular education environment. These services also include infants and toddlers that are served by our early intervention service members and our postsecondary college experience and adult living programs that serve individuals who have graduated or who are over 21 and are no longer eligible for services under IDEA.
  • National Association of Special Education Teachers

    National Association of Special Education Teachers
    1250 Connecticut Avenue, N.W.
    Suite 200
    Washington D.C.  20036
    800-754-4421 - Voice and Fax

Epilepsy

  • Epilepsy Foundation

    The Epilepsy Foundation, a national non-profit with more than 47 affiliated organizations throughout the United States, has led the fight against seizures since 1968. The Foundation works to prevent, control and cure epilepsy through community services, public education, federal and local advocacy, and supporting research into new treatments and therapies.

Family/Parents

  • Center for Parent Information & Resources (CPIR)

    CPIR serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities.

  • Family Voices

    Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Throughout their national grassroots network, Family Voices provides families with resources and support to make informed decisions, advocate for improved public and private policies, build partnerships among families and professionals, and serve as a trusted resource on health care.

  • National Center on Shaken Baby Syndrome (NCSBS)

    The mission of NCSBS is to educate and train parents and professionals and conduct research that will prevent the shaking and abuse of infants in the USA.

  • Parents Helping Parents

    As a parent-directed, community-based organization, PHP's mission was developed in response to the need in our community for information, training, and support services for families who have children with special needs and the professionals who serve them.
  • Pathways

    Since 1985, Pathways has used evidence-based practice and multimedia as tools to promote each child’s fullest inclusion. They strive to empower health professionals and parents with knowledge of the benefit of early detection and early intervention for children’s sensory, motor, and communication development.

  • Through the Looking Glass (TLG)

    TLG is a nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue. TLG is a disability community-based nonprofit organization, which emerged from the independent living movement, and was founded in 1982 in Berkeley, California. Their mission is "To create, demonstrate and encourage non-pathological and empowering resources and model early intervention services for families with disability issues in parent or child which integrate expertise derived from personal disability experience and disability culture."

Fetal Alcohol Syndrome

General Advocacy & Support Agencies

  • 2-1-1

    2-1-1 can be accessed by phone or computer. A toll-free call to 2-1-1 connects you to a community resource specialist in your area who can put you in touch with local organizations that provide critical services that can improve - and save - lives. You'll find information about:

    • supplemental food and nutrition programs
    • shelter and housing options and utilities assistance
    • emergency information and disaster relief
    • employment and education opportunities
    • services for veterans
    • health care, vaccination and health epidemic information
    • addiction prevention and rehabilitation programs
    • reentry help for ex-offenders
    • support groups for individuals with mental illnesses or special needs
    • a safe, confidential path out of physical and/or emotional domestic abuse

    Whether in times of natural disaster or personal crisis, 2-1-1- is committed to being the first, most essential resource to anyone who needs help.

  • Advocating Change Together (ACT)

    There is a disparity between the rights people with disabilities have, and the rights they are aware of and actually able to exercise. By developing leaders in the disability rights movement, facilitating workshops, creating training materials, and connecting people through a statewide network, ACT works to narrow that disparity.

  • American Association of People with Disabilities

    2013 H STREET, NW, 5TH FLOOR, WASHINGTON, DC 20006 

     202-521-4316 | 800-840-8844

  • Center for Self-Determination

    The Center for Self-Determination was formed as a non-profit organization in 2000, designed to continue the progress made during the period of national growth which was originally spawned by a grant from the Robert Wood Johnson Foundation (RWJ) in the late 1990’s.

  • Children’s Disability Information

    Essential articles and resources for parents of children with disabilities and special needs. Hundreds of articles, over 20 years of online support from and for professionals and parents.

  • Disability and Business Technical Assistance Centers (DBTACs)

    800-949-4232 (V/TT) Call this toll-free number for information, materials, technical assistance, or training on the ADA. This number will automatically route your call to the DBTAC in your region.

  • Disability Rights Education & Defense Fund

    DREDF is dedicated to improving the lives of people with disabilities through legal advocacy, training, education, and public policy and legislative development.

  • disAbility.gov

    U.S. federal government website for information on disability programs and services nationwide. The site connects people with disabilities, their families and caregivers to helpful resources on topics such as how to apply for disability benefits, find a job, get health care or pay for accessible housing. You can also find organizations in your community to help you get the support you need.

  • Easter Seals

    Easter Seals provides exceptional services, education, outreach and advocacy so that people living with autism spectrum disorder and other disabilities can live, learn, work and play in our communities.

  • endAbuse of People with Disabilities

    Alberti Center for Bullying Abuse Prevention 

    428 Baldy Hall, Buffalo, NY 14260-1000 

    (716) 645-1532 
    alberticenter@buffalo.edu

  • Job Accommodation Network (JAN)

    The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues.

  • March of Dimes

    March of Dimes fights for the health of all moms and babies. We're advocating for policies to protect them. We're working to radically improve the health care they receive. We're pioneering research to find solutions. We're empowering families with the knowledge and tools to have healthier pregnancies. By uniting communities, we're building a brighter future for us all.

  • National Center on Accessibility

    501 North Morton Street, Suite 109 | Bloomington, IN 47404-3732
    Voice: (812) 856-4422 | Fax: (812) 856-4480 | E-mail: nca@indiana.edu

  • National Council on Disability (NCD)

    NCD is an independent federal agency charged with advising the President, Congress, and other federal agencies regarding policies, programs, practices, and procedures that affect people with disabilities.

  • National Disability Rights Network - Protection & Advocacy for Individuals with Disabilities

    The National Disability Rights Network works in Washington, DC on behalf of the Protection and Advocacy Systems (P&As) and Client Assistance Programs (CAPs), the nation’s largest providers of legal advocacy services for people with disabilities.

  • National Organization for Rare Disorders (NORD)

    NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.  NORD, along with its more than 280 patient organization members,  is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

  • National Organization for Rare Disorders (NORD)

    NORD’s Rare Disease Database provides brief introductions for patients and caregivers to specific rare diseases. 

  • National Organization on Disability (NOD)

    NOD is a private, non-profit organization that promotes the full participation and contributions of America’s 56 million people with disabilities in all aspects of life. Today, NOD focuses on increasing employment opportunities for the 79 percent of working-age Americans with disabilities who are not employed.

  • President’s Committee for People with Intellectual Disabilities

    In 1966, President Lyndon B. Johnson established The President’s Committee for People with Intellectual Disabilities (PCPID), formerly The President's Committee on Mental Retardation, to ensure the right of a “decent, dignified place in society” for people with intellectual disabilities. Since that time, PCPID has served as a federal advisor to the President and the Secretary of Health and Human Services on matters relating to persons with intellectual disabilities.

  • Self Advocates Becoming Empowered (SABE USA)

    Our Mission: To ensure that people with disabilities are treated as equals and that they are given the same decisions, choices, rights, responsibilities, and chances to speak up to empower themselves; opportunities to make new friends, and to learn from their mistakes.

  • TASH

    (Formerly The Association for Persons with Severe Handicaps) The mission of TASH is to promote the full inclusion and participation of children and adults with significant disabilities in every aspect of their community, and to eliminate the social injustices that diminish human rights.

Independent Living

  • Independent Living Institute

    ILI is a policy development center specializing in consumer-driven policies for disabled peoples' self-determination, self-respect and dignity. They run a virtual library and interactive services for persons with extensive disabilities and are experts in designing and implementing direct payment schemes for personal assistance services, mainstream taxi and assistive technology.

  • Independent Living Research Utilization

    ILRU, founded in 1977, has a long history of providing research, education and consultation in the areas of independent living, the Americans with Disabilities Act, home and community-based services and health issues for people with disabilities.
  • Job Accommodation Network (JAN)

    JAN is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues. Working toward practical solutions that benefit both employer and employee, JAN helps people with disabilities enhance their employability, and shows employers how to capitalize on the value and talent that people with disabilities add to the workplace.

  • National Council on Independent Living (NCIL)

    As a membership organization, NCIL advances independent living and the rights of people with disabilities through consumer-driven advocacy. NCIL envisions a world in which people with disabilities are valued equally and participate fully.
  • National Rehabilitation Information Center (NARIC)

    NARIC is the library of the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). They collect, catalog, and disseminate the articles, reports, curricula, guides, and other publications and products of the research projects funded by NIDILRR. NIDILRR funds more than 250 projects each year that conduct research on a wide range of issues including technology, health and function, independent living, and capacity building.

Learning Disabilities

  • International Dyslexia Association (IDA)

    IDA is a non-profit, scientific, and educational organization dedicated to the study and treatment of dyslexia as well as related language-based learning differences. IDA is the oldest such organization in the U.S. serving individuals with dyslexia, their families, and professionals in the field.

  • LD Online

    When children have learning problems, their parents are usually the first to notice that something is just not right. Teachers often notice a child having trouble in their class. And when they notice, they want reliable information so they can help their students.

  • Learning Disabilities Association of America (LDA)

    LDA’s mission is to create opportunities for success for all individuals affected by learning disabilities and to reduce the incidence of learning disabilities in future generations.
  • National Center for Learning Disabilities (NCLD)

    The mission of NCLD is to improve the lives of the 1 in 5 individuals nationwide with learning and attention issues—by empowering parents and young adults, transforming schools and advocating for equal rights and opportunities. We envision a society in which every individual possesses the academic, as well as the social and emotional skills needed to succeed in school, at work and in life.
  • Smart Kids with Learning Disabilities

    Smart Kids with Learning Disabilities is a non-profit organization dedicated to empowering the parents of children with learning disabilities and ADHD. Their mission is to educate, guide and inspire families of children with learning disabilities or ADHD and change the perception of learning disabilities as a stigmatizing condition.

Medical

  • American Diabetes Association

    The mission of the American Diabetes Association is to prevent and cure diabetes and to improve the lives of all people affected by diabetes.

  • American Leprosy Missions (Hansen’s Disease)

    When you support our work, you cure people suffering from leprosy, provide ongoing care to affected people, and help bring an end to this ancient disease. The ministry of American Leprosy Missions is only possible with the partnership of people like you, who share our commitment to transforming lives by bringing hope and dignity to some of the world’s most marginalized people.

  • Aplastic Anemia & MDS International Foundation (AA & MDSIF)

    AA & MDSIF is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases.

  • Asthma & Allergy Foundation of America (AAFA)

    AAFA, a not-for-profit organization founded in 1953, is the leading patient organization for people with asthma and allergies, and the oldest asthma and allergy patient group in the world.

  • Batten Disease Support & Research Association (BDSRA)

    Batten disease, or Neuronal Ceroid Lipofuscinosis (NCL), is a family of rare diseases caused by autosomal recessive genetic mutations resulting in the body.

    These genetic mutations disrupt the cells' ability to dispose of wastes. Cells are thrown out of balance with the build-up of proteins and lipids (fats). 

  • Cleft Palate Foundation

    Providing personalized support, education and resources for every stage of your cleft or craniofacial journey.

  • Crohn’s and Colitis Foundation of America (CCFA)

    The mission of the Crohn's & Colitis Foundation is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases.

  • Cystic Fibrosis Foundation

    We are dedicated to improving the daily lives of people with cystic fibrosis.

  • Epilepsy Foundation

    We improve and save lives through our community services, public education, access to care campaign, research initiatives, and new therapies funding.

  • Galactosemia Foundation

    Galactosemia Foundation, formally, Parents of Galactosemic Children, Inc is a non-profit charitable organization. Founded in February 1985 by a small group of mothers in New York, the Galactosemia Foundation realizes the need for further information and networking between affected families and professionals. Metabolic Clinics across the nation continue to assist the Galactosemia Foundation in researching families and information.

  • Genetic Alliance

    Genetic Alliance is the world’s leading nonprofit health advocacy organization committed to engaging individuals, families, and communities in transforming health. Genetic Alliance’s network includes more than 1,200 disease-specific advocacy organizations, as well as thousands of universities, private companies, government agencies, and public policy organizations. The network is a dynamic and growing open space for shared resources, creative tools, and innovative programs.
  • Histiocytosis Association of America

    We are dedicated to raising awareness about histiocytic disorders, providing educational and emotional support, and funding research leading to better treatments and a cure.

  • Histiocytosis Association of America

    Our mission: We are dedicated to raising awareness about histiocytic disorders, providing educational and emotional support, and funding research leading to better treatments and a cure.

  • Hydrocephalus Association

    The Hydrocephalus Association provides support, education and advocacy for people whose lives have been touched by hydrocephalus and the professionals who work with them.

  • Leukemia & Lymphoma Society (LLS)

    LLS is the world's largest voluntary (nonprofit) health organization dedicated to funding blood cancer research and providing education and patient services.

  • Lupus Foundation of America

    Our research is anchored in what matters: Improving Lives. We have contributed to every major lupus research breakthrough during the past 40+ years. We’re attacking lupus from every direction and we won’t stop until lupus is cured.

  • Medic Alert Foundation

    1.800.432.5378

    101 Lander Avenue

    Turlock, CA 95380

  • Moebius Syndrome Foundation

    The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

  • Myasthenia Gravis Foundation of America

    Myasthenia gravis (pronounced My-as-theen-ee-a grav-us) comes from the Greek and Latin words meaning "grave muscular weakness." The most common form of MG is a chronic autoimmune neuromuscular disorder that is characterized by fluctuating weakness of the voluntary muscle groups.

  • Myasthenia Gravis Foundation of America

    Myasthenia gravis (MG) is the most common primary disorder of neuromuscular transmission. The usual cause is an acquired immunological abnormality, but some cases result from genetic abnormalities at the neuromuscular junction. Much has been learned about the pathophysiology and immunopathology of myasthenia gravis during the past 20 years. What was once a relatively obscure condition of interest primarily to neurologists is now the best characterized and understood autoimmune disease. A wide range of potentially effective treatments are available, many of which have implications for the treatment of other autoimmune disorders.

  • National Council for Aging Care

    877-664-6140 

    1200 G STREET, NW, WASHINGTON, D.C. 20005

  • National Fragile X Foundation

    Fragile X syndrome (FXS) is a genetic condition that causes intellectual disability, behavioral and learning challenges, and various physical characteristics. Though FXS occurs in both genders, males are more frequently affected than females, and generally with greater severity. Life expectancy is not affected in people with FXS because there are usually no life-threatening health concerns associated with the condition.

    We provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

  • National Lymphedema Network

    The National Lymphedema Network is dedicated to promoting the awareness of lymphedema and empowering people with lymphedema to live life to the fullest.

  • National Lymphedema Network

    The mission of the National Lymphedema Network is to create awareness of lymphedema through education and to promote and support the availability of quality clinical interventions for all individuals at risk for or affected by lymphedema.

  • National Niemann-Pick Disease Foundation

    The National Niemann-Pick Disease Foundation, Inc. (NNPDF) is a non-profit, unbiased patient advocacy and family support organization dedicated to supporting and empowering patients and families affected by Niemann-Pick disease, through education, collaboration and research. 

  • National Organization for Rare Diseases

    Search NORD’s Database for reports on more than 1,200 diseases. 

  • National Reye's Syndrome Foundation

    Established in 1974, the National Reye's Syndrome Foundation is a nonprofit health advocacy organization, whose mission is to eradicate the incidence of Reye's Syndrome.

  • National Reye’s Syndrome Foundation

    Reye's Syndrome, a deadly disease, strikes swiftly and can attack any child, teen, or adult without warning. All body organs are affected with the liver and brain suffering most seriously. While the cause and cure remain unknown, research has established a link between Reye's Syndrome and the use of aspirin and other salicylate containing medications, over the counter products, and topical use products.

  • Office of Orphan Products Development (OOPD)

    The FDA Office of Orphan Products Development (OOPD) mission is to advance the evaluation and development of products (drugs, biologics, devices, or medical foods) that demonstrate promise for the diagnosis and/or treatment of rare diseases or conditions.

  • Prader-Willi Syndrome Association (USA)

    We are here to help! We are committed to ensuring that newly diagnosed families have the most up to date research material, educational literature, counseling, nutrition, and medical information all within our Package of Hope which we have been providing to families for well over a decade.

  • Prader-Willi Syndrome Association (USA)

    PWS is a complex genetic disorder affecting appetite, growth, metabolism, cognitive function and behavior.  It is typically characterized by low muscle tone, short stature (when not treated with growth hormone), incomplete sexual development, cognitive disabilities, behavioral problems, and the hallmark characteristics – chronic feelings of insatiable hunger and a slowed metabolism that can lead to excessive eating and life-threatening obesity. Those who have PWS need intervention and strict external controls, sometimes including padlocking access to food, to maintain normal weight and to help save their lives.

  • Scleroderma Foundation

    The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research.

  • Sickle Cell Disease Association of America (SCDAA)

    Our Mission: To advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.

  • Solve ME/CFS Initiative (SMCI)

    SMCI was founded in 1987 and has established itself as the leading charitable organization dedicated to myalgic encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) – also known as chronic fatigue and immune dysfunction syndrome (CFIDS).

  • Spondylitis Association of America (SAA)

    Our Mission: To be a leader in the quest to cure ankylosing spondylitis and related diseases, and to empower those affected to live their lives to the fullest.

  • Sturge-Weber Foundation

    We exist to improve the quality of life and care for people with Sturge-Weber syndrome and associated Port Wine Birthmark conditions. We support them with collaborative education and advocacy in tandem with translational research as we promote effective management and awareness. 

  • Tuberous Sclerosis Alliance

    TSC is a genetic disorder that causes tumors to form in various organs, primarily the brain, eyes, heart, kidneys, skin and lungs. It’s also the leading genetic cause of both epilepsy and autism.

  • Turner Syndrome Society of the United States

    Turner syndrome (TS) occurs in approximately one out of every 2,000- 4,000 female live births. It is a chromosomal condition describing girls and women with common features, physical traits and medical conditions caused by the complete or partial absence of the second sex chromosome. TS was first described in the United States in 1938 by Dr. Henry Turner.

Mental Health

  • 1st Step Behavioral Health

    Drug and Alcohol Addiction Treatment Location Resources: Taking the first step towards a life in recovery is often very difficult. Even with the support of friends and family, it can still feel like a lonely road to travel. A great way to build peace of mind is understanding that you are not alone in your struggle and that there are plenty of recovery options to fit your individual needs.

  • 60 Digital Resources for Addressing Substance Use Disorders, Addiction and Recovery

  • Addiction Center

    Recovery is possible. Are you or a loved one struggling with an addiction to alcohol, prescription painkillers or illicit drugs like heroin? Addiction Center can connect you with a rehab center or detox facility that can help you start your new life.

    For immediate treatment help, call 877-671-7087.

  • Addiction Counselor-Resource Page

  • Addiction Resource

    Addiction Resource was created to help people struggling with substance abuse and to provide support to their loved ones. Their goal is to make helpful and verifiable information available on substance abuse and addiction recovery as well as direct you to the best sources of help, including The Substance Abuse and Mental Health Services Administration (SAMHSA) at the U.S. Department of Health and Human Services.

  • AddictionResource.net

  • Al-Anon

    Al‑Anon is a mutual support program for people whose lives have been affected by someone else’s drinking. By sharing common experiences and applying the Al-Anon principles, families and friends of alcoholics can bring positive changes to their individual situations, whether or not the alcoholic admits the existence of a drinking problem or seeks help.

     

  • Alcohol Addiction Center

    5000 Birch Street, West Tower 
    Suite 3000 
    Newport Beach, CA 92660

    855 218-5225

  • Alcohol Rehab Guide

    Alcohol Rehab Guide (ARG) is an organization that offers in-depth, reliable information on all aspects of alcohol abuse and addiction. They provide support for those who are struggling as well as their parents, friends, family members, teachers, health workers and all members of the community.

  • American Addiction Centers (AAC)

    (888) 987-1784 

    200 Powell Pl Brentwood, TN 37027

  • American Society of Addiction Medicine (ASAM)

    11400 Rockville Pike, Suite 200, Rockville, MD 20852

    Phone: 301.656.3920  Fax: 301.656.3815  

  • Choice Mutual Suicide Prevention

  • CIT International First Responder Mental Health Resources

  • Detox to Rehab

    Our goal is to be the only place you need to go to find out everything you need to know regarding addiction and recovery. We're not only here to be your encyclopedia, we can also help you to find the perfect place for you or your loved one to get clean and sober. Detox to Rehab: Real Resources, Real Recovery.

  • Detox.net

    1200 Fourth Ave., San Diego, CA, 92101  
    1-877-849-6581

  • Drug Rehab Connections

    The Drug Rehab Connections community is made up of those who want to help and give back. We are here to share our stories of recovery and hope as we begin the steps together towards rehab and recovery.

  • DrugAbuse.com: Mental Health and Drug Abuse

    Trusted resources for substance abuse and addiction treatment.

  • DrugRehab.com

    At DrugRehab.com, our mission is to equip patients and families with the best information, resources and tools to overcome addiction and lead a lifelong recovery.

  • Find Rehab Centers

    A database of addiction treatment rehab centers located in Niagara Falls, New York. Niagara Falls rehabs and addiction treatment service providers include inpatient rehab facilities, outpatient rehabs, detox centers and other service providers. The following Niagara Falls listings provide detailed information on substance abuse services offered, costs and payment options, contact information and more, whether you are seeking treatment for yourself or a loved-one in Niagara Falls, Lewis County or surrounding areas in New York.

  • Getting Over Grief: Understanding its Stages and How to Heal

    Grief is a reactionary feeling of sadness experienced following any major loss. It is often associated with suffering, and is also considered a necessary process of deliverance termed resilience. 

  • HelpGuide.org

    We started HelpGuide in 1999, dedicated to our daughter, Morgan Segal. We believe her tragic suicide could have been avoided if she had access to professional information that gave her help and hope. We wanted to create an online experience that empowers people to help themselves create better mental health.

    During the last 16 years we kept expanding and refining the website. We stay on top of developments in the psychological, social, and medical sciences, both through our own research and via our collaboration with Harvard Health Publications. HelpGuide has become a globally acclaimed resource serving over 80 million people annually.

    We work with a talented, caring team and savor the results. The goals set in 1999 are fulfilled beyond our wildest dreams. And we’ve been told that HelpGuide has saved many lives.

  • International Association of Chiefs of Police Suicide Prevention Initiative

    IACP has long recognized there is an urgent and ongoing need for leadership on the issue of employee suicide prevention and awareness.

  • Mental Health America (MHA)

    MHA, the leading advocacy organization addressing the full spectrum of mental and substance use conditions and their effects nationwide, works to inform, advocate and enable access to quality behavioral health services for all Americans. With nearly a century of experience, MHA has an established record of effective national and grassroots actions that promote mental health, and address mental and substance use issues with compassionate and concrete solutions.
  • Mental Health First Aid Act

    Mental Health First Aid is a skills-based training course that teaches participants about mental health and substance-use issues.

  • Narcotics Anonymous

    Narcotics Anonymous is a global, community-based organization with a multilingual and multicultural membership. NA was founded in 1953, and members hold nearly 67,000 meetings weekly in 139 countries today.

  • National Alliance on Mental Health (NAMI)

    NAMI is the nation’s largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness. NAMI advocates for access to services, treatment, supports and research and is steadfast in its commitment to raise awareness and build a community for hope for all of those in need.

  • National Center for PTSD

     (802) 296-6300  
    ncptsd@va.gov

  • National Council for Behavioral Health

    Email
    Communications@TheNationalCouncil.org

    Phone
    202.684.7457

    1400 K Street NW, Suite 400

    Washington DC, 20005

  • National Drug Helpline

  • National Federation of Families for Children's Mental Health

    The National Federation of Families for Children’s Mental Health is a national family-run organization linking more than 120 chapters and state organizations focused on the issues of children and youth with emotional, behavioral, or mental health needs and their families.
  • National Institute of Mental Health

    • 1-866-615-6464 (toll-free)
    • 1-301-443-8431 (TTY)
      1-866-415-8051 (TTY toll-free
    • Fax 
    • 1-301-443-4279

    Email Us: nimhinfo@nih.gov

    •  National Institute of Mental Health
      Office of Science Policy, Planning, and Communications
      6001 Executive Boulevard, Room 6200, MSC 9663
      Bethesda, MD 20892-9663

  • National Institute on Alcohol Abuse and Alcoholism - National Institutes of Health

    The mission of the National Institute on Alcohol Abuse and Alcoholism is to generate and disseminate fundamental knowledge about the effects of alcohol on health and well-being, and apply that knowledge to improve diagnosis, prevention, and treatment of alcohol-related problems, including alcohol use disorder, across the lifespan.

  • National Institute on Alcohol Abuse and Alcoholism - National Institutes of Health

    The mission of the National Institute on Alcohol Abuse and Alcoholism is to generate and disseminate fundamental knowledge about the effects of alcohol on health and well-being, and apply that knowledge to improve diagnosis, prevention, and treatment of alcohol-related problems, including alcohol use disorder, across the lifespan.

  • National Mental Health Consumer’s Self-Help Clearinghouse

    Clearinghouse is a peer-run national technical assistance and resource center that fosters recovery, self-determination, and community inclusion.

  • National Suicide Prevention Lifeline

    We can all help prevent suicide. The Lifeline provides 24/7, free and confidential support for people in distress, prevention and crisis resources for you or your loved ones, and best practices for professionals.

    1-800-273-TALK (8255)

  • New York Drug Rehab Centers And Addiction Treatment Options

    New York residents have been impacted by the opioid epidemic, and many have lost friends and family members to overdoses. In response, New York has created a comprehensive network of services for the prevention and treatment of substance use disorders.

  • On The Wagon: Expert Substance Abuse & Mental Health Center

    Positive peer pressure, role modeling and environmental strategies can prevent destructive decisions by young people, and set a healthier, safer course for lives. We are focusing on a peer-to-peer education, prevention, and activism driven organization dedicated to preventing destructive decisions, particularly underage drinking, other drug use, risky and impaired driving.

  • Online Rehab and Virtual Recovery

  • Overcoming the Darkness

    It is the mission of Overcoming the Darkness to reduce stigma, increase understanding surrounding the many challenges of mental health related issues, create a culture that openly discusses the topic of mental illness, suicide and suicide related behavior, and above all proclaim that there is hope and that a level of recovery is available to everyone, so that individuals and families will no longer need to suffer in silence.

  • Recovery Experts

    We provide the most comprehensive, accurate, up-to-date information about drug and alcohol treatment centers for people who are struggling with addiction with a simple yet powerful and easy-to-use website.

  • Substance Abuse and Mental Health Services Administration (SAMHSA)

    Office of Communications
    5600 Fishers Lane
    Rockville, MD 20857
    240-276-2130

    877-SAMHSA-7 (726-4727)

    SAMHSAInfo@samhsa.hhs.gov

Physical & Mobility

  • Alliance for Technology Assistance (ATA)

    The mission of the ATA is to increase the use of technology by children and adults with disabilities and functional limitations. ATA encourages and facilitates the empowerment of people with disabilities to participate fully in their communities. Through public education, information and referral, capacity building in community organizations, and advocacy/policy efforts, the ATA enables millions of people to live, learn, work, define their futures, and achieve their dreams.

  • American Academy of Pain Medicine

     

    8735 W Higgins Rd, Ste 300  
    Chicago, IL 60631-2738  

    847.375.4731 | info@painmed.org

  • Amyotrophic Lateral Sclerosis Association (ALS, Lou Gehrig’s Disease)

    Our Mission: To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.

  • Cerebral Palsy Group

    866-510-0717  

    13506 Summerport Village Pkwy 
    Windermere, FL 34786 407-501-5056

  • Cerebral Palsy Group

    Cerebral Palsy Group is a national organization that was created so that it may serve the individuals and families who have been diagnosed with cerebral palsy. We are here to provide information and support so that we may help provide resources and education to those affected by CP.

  • Cerebral Palsy Guidance

    We provide vital guidance and assistance to parents of a child with cerebral palsy.

  • Cerebral Palsy Guide

    Cerebral palsy (CP) is a disability caused by brain damage that restricts normal movement and coordination. Each year, 10,000 children in the U.S. are diagnosed with cerebral palsy. Cerebral Palsy Guide provides free educational materials, financial options and support to help those across the country affected by this disorder.

  • Children's Craniofacial Association (CCA)

    CCA is a national nonprofit organization, headquartered in Dallas, Texas. Nationally and internationally, CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.

  • FACES: The National Craniofacial Association

    FACES assists families who would otherwise be financially unable to take their child to major medical centers where specialized craniofacial teams can provide the safest and most advanced treatments for building a face and skull.
  • International Fibrodysplasia Ossificans Progressiva Foundation (IFOPA)

    IFOPA is a non-profit organization supporting medical research, education and communication for those afflicted by the rare genetic condition Fibrodysplasia Ossificans Progressiva (FOP). Their mission is to fund research to find a cure for FOP while supporting individuals and their families through education, public awareness and advocacy.

  • Little People of America (LPA)

    LPA is dedicated to improving the quality of life for people with dwarfism throughout their lives while celebrating with great pride Little People’s contribution to social diversity. LPA strives to bring solutions and global awareness to the prominent issues affecting individuals of short stature and their families.

  • Multiple Sclerosis Association of America (MSAA)

    MSAA is a leading resource for the entire MS community, improving lives today through vital services and support. MSAA is a national, nonprofit organization founded in 1970 and is dedicated to improving lives today. MSAA provides ongoing support and direct services to individuals with MS, their families, and their care partners.

  • Muscular Dystrophy Association (MDA)

    MDA is the world’s leading nonprofit health agency dedicated to finding treatments and cures for muscular dystrophy, amyotrophic lateral sclerosis (ALS) and other neuromuscular diseases.

  • National Ataxia Foundation

    The National Ataxia Foundation is dedicated to improving the lives of persons affected by ataxia through support, education, and research.
  • National Center on Health, Physical Activity and Disability (NCHPAD)

    Founded in 1999, the National Center on Health, Physical Activity and Disability (NCHPAD) is a public health practice and resource center on health promotion for people with disability. NCHPAD seeks to help people with disability and other chronic health conditions achieve health benefits through increased participation in all types of physical and social activities, including fitness and aquatic activities, recreational and sports programs, adaptive equipment usage, and more.

  • National Center on Physical Activity and Disability (NCPAD)

    Building Healthy Inclusive Communities

  • National Institute of Neurological Disorders and Stroke

    NINDS - Neuroscience Center 
    Division of Extramural Activities 
    6001 Executive Boulevard Suite 3309
    Bethesda, MD 20892- 9531*  

    (800) 352-9424

  • National Library Service for the Blind and Physically Handicapped (NLS)

    Through a national network of cooperating libraries, NLS administers a free library program of braille and audio materials circulated to eligible borrowers in the United States by postage-free mail.
  • National Multiple Sclerosis Society (NMSS)

    NMSS helps each person address the challenges of living with MS through their 50-state network of chapters. The Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward.

  • National Scoliosis Foundation (NSF)

    NSF is a patient-led nonprofit organization dedicated since 1976 to helping children, parents, adults, and health-care providers to understand the complexities of spinal deformities such as scoliosis.

  • Osteogenesis Imperfecta Foundation (OI Foundation)

    The OI Foundation is the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta. The Foundation's mission is to improve the quality of life for people affected by OI through research to find treatments and a cure, education, awareness, and mutual support.

  • Polio Survivors

    Post-Polio Health International's mission is to collect, preserve and make available research and knowledge to promote the well-being and independence of polio survivors, home ventilator users, their caregivers and families, and to support the health professionals who treat them.

  • Polio Survivors

    Post-Polio Health International's mission is to collect, preserve and make available research and knowledge to promote the well-being and independence of polio survivors, home ventilator users, their caregivers and families, and to support the health professionals who treat them.

  • Spina Bifida Association (SBA)

    SBA serves adults and children who live with the challenges of Spina Bifida. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect.

  • Spondylitis Association of America (SAA)

    Our Mission: To be a leader in the quest to cure ankylosing spondylitis and related diseases, and to empower those affected to live their lives to the fullest.

  • United Cerebral Palsy (UCP)

    UCP educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. UCP and its nearly 100 affiliates have a mission to advance the independence, productivity and full citizenship of people with a spectrum of disabilities by providing services and support to more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities.

  • United Spinal Association

    United Spinal Association’s mission is to improve the quality of life of all people living with spinal cord injuries and disorders (SCI/D).

Speech & Communication

  • American Speech-Language-Hearing Association (ASHA)

    ASHA is the national professional, scientific, and credentialing association for more than 173,070 members and affiliates who are audiologists, speech-language pathologists, speech, language, and hearing scientists, audiology and speech-language pathology support personnel, and students.

  • National Cued Speech Association (NCSA)

    NCSA was formed in 1982 to serve the needs of parents and special educators working with children who are deaf and hard of hearing. The NCSA is primarily an advocacy organization, and focuses on outreach, family and educator support, as well as community-based education in the form of Cue Camps and sponsored workshops. The NCSA also provides instructor certification for teaching Cued Speech classes.

  • National Spasmodic Dysphonia Association

    Spasmodic Dysphonia (SD), a focal form of dystonia, is a neurological voice disorder that involves "spasms" of the vocal cords causing interruptions of speech and affecting the voice quality. SD can cause the voice to break up or to have a tight, strained, or strangled quality.

  • National Stuttering Association (NSA)

    The NSA provides support, friendship, and information to the stuttering community, instilling the sense of self-worth so often missing in the lives of those who battle this disorder. With members nationwide and over 100 self-help support groups in the United States, the NSA provides information about stuttering, increases public awareness of stuttering, serves as a support and advocacy group, and is a referral organization for speech therapy sources throughout the United States.
  • The Childhood Apraxia of Speech Association of North America (CASANA)

    CASANA is a nonprofit, publicly funded charity whose mission is to strengthen the support systems in the lives of children with apraxia so that each child is afforded their best opportunity to develop speech and communication.

  • The Stuttering Foundation

    The Stuttering Foundation provides free online resources, services and support to those who stutter and their families, as well as support for research into the causes of stuttering.

Tourette Syndrome

  • National Tourette Syndrome Association (TSA)

    Founded in 1972 in Bayside, New York, TSA is the only national voluntary non-profit membership organization in this field. Their mission is to identify the cause of, find the cure for and control the effects of Tourette Syndrome. TSA offers resources and referrals to help people and their families cope with the problems that occur with TS along with raising public awareness and countering media stereotypes about TS.

Victimization